Tell Congress to Protect Patient Assistance for Individuals with Chronic & Life-Threatening Conditions Health plans across the country are denying coverage to patients with expensive – yet devastating – conditions from their plans, undermining the intent of the Affordable Care Act (ACA) and unraveling the safety net patient assistance groups have worked so hard to create.


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Join the PSI Patient Coalition

Interested in making your voice heard? Join the PSI Patient Coalition and become a PSI patient advocate!

PSI’s patient coalition is a voluntary patient coalition for individuals interested in advocating on behalf of patients with rare and chronic illnesses.

  • Advocate lawmakers about the issues that matter to patients with rare and chronic diseases.
  • Learn about opportunities in your state where you can make a difference.
  • Let PSI know about the issues going on in your state and on the federal level that are important to you.
  • Do you know a legislator that might help PSI?