PSI’s Evening of Hope: A Look Back

PSI’s Evening of Hope: A Look Back

Each year, at their annual Evening of Hope event, Patient Services Inc., present various awards to honor patient champions within the chronically-ill community. In leading up to this year’s Evening of Hope on September 19th in Washington DC’s Newseum, we will be...
Our GIST Story: An Eleventh-Hour Miracle

Our GIST Story: An Eleventh-Hour Miracle

“She was a vibrant, energetic woman. Then all of a sudden, she wasn’t. Our devoted mother of 3 was lying fragile, almost lifeless in a hospital bed. At first, we thought it was just a bad flu, but the doctor said it was cancer, stage 4. The news knocked the air out of...
Forgotten No More: My Fabry Diagnosis

Forgotten No More: My Fabry Diagnosis

“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago. In my mind, I could not accept that how something so important could be forgotten.” Imagine living your life battling an unknown illness, yet all...
Looking Back: The 2017 Extraordinary Support Award Recipient

Looking Back: The 2017 Extraordinary Support Award Recipient

“Nobody really knows of this disease, it has similar symptoms to asthma, or being out of shape. The more we can educate physicians about it, the better.” Says Brad Wong, president and CEO of The Pulmonary Hypertension Association in an interview with app.com. In 2017,...
Fighting Sickle Cell Disease: Honoring Dr. Wally Smith

Fighting Sickle Cell Disease: Honoring Dr. Wally Smith

“Nobody wanted these patients in 1984 in Memphis.” – Dr. Wally Smith In 1984, when Dr. Wally Smith began working with patients with Sickle Cell Disease, nobody wanted them. Often times, it was a matter of getting these patients off the roles as quickly as possible...
A New Normal: Living With Hypoparathyroidism

A New Normal: Living With Hypoparathyroidism

“I was living in fear, not fully understanding what was happening or what the future held, this was unacceptable, no clear explanation it was stressful, scary.” – PSI Patient, Elaine Not knowing what the future held, and living with fear, after much time, Elaine had...
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