Patient Services, Inc. Supports Rare Disease Day®
Joins Global Movement to Raise Important Awareness for Rare Diseases
MIDLOTHIAN, VA—February 24, 2015—Patient
Services, Inc. has joined forces with rare disease patients and health care
advocates in the U.S. and around the world for Rare Disease Day® on February 28.
Rare Disease Day is an annual awareness day dedicated to elevating
public understanding of rare diseases and calling attention to the special
challenges faced by patients and the community.
Patient Services, Inc. (PSI) is the
“ground breaking” 501(c) (3) non-profit, charitable organization of its kind (www.patientservicesinc.org). For over two decades, we have recognized the importance
of providing a “safety net” for patients with rare chronic illnesses who
struggle to keep up with expensive premiums and co-payments. PSI restores hope and health to persons and
families living with a rare disease.
to the National Institutes of Health (NIH), a disease is rare if it affects
fewer than 200,000 people. Nearly 1 in
10 Americans live with a rare disease—affecting 30 million people—and two-thirds
of these patients are children. There are more than 7,000 rare diseases and
only approximately 450 FDA-approved medical treatments.
Rare Disease Day
takes place every year on the last day of February (February 28 or February 29
in a leap year)—the rarest date on the calendar—to underscore the nature of rare
diseases and what patients face. It was
established in Europe in 2008 by EURORDIS, the organization representing rare
disease patients in Europe, and is now observed in more than 80 nations. Rare
Disease Day is sponsored in the U.S. by the National Organization for Rare
Disorders (NORD)®, a leading independent, non-profit organization committed to
the identification, treatment, and cure of rare diseases.
information about Rare Disease Day in the U.S., go to www.rarediseaseday.us. For information about global activities, go
to www.rarediseaseday.org. To search for information about rare
diseases, visit NORD’s website, www.rarediseases.org.