Advocacy

Our Mission

To advocate for greater access to affordable health care and treatment for patients with rare, chronic conditions. Working on both the state and federal level, the department combines expertise in legislative and regulatory affairs with a passion for advocacy ensuring our patients’ voices are heard and patient assistance is protected.

Advocacy Ambassador Participation

Participation in the PSI Advocacy Ambassador Program is completely voluntary and will have no effect on the level of financial assistance that you will receive from PSI.

Race to 500 Ambassadors

Introducing the “Race to 500” campaign: we currently have over 300 Advocacy Ambassadors on board, now we need your help getting it to 500!

The Ambassador with the most referrals, once our member goal is met, will win an all-expense paid trip to PSI’s annual Lobby Day in Washington D.C. on May 1st, 2019, and branded goodies!

 

For your referral to count, the person referred must:

1. Join the Ambassadors Program above.

2. Join our Facebook Group here: https://bit.ly/2ynkPh4 and list the first and last name of the Ambassador who referred them to the group

(If person referred does not have a Facebook account, he/she can e-mail us the name of the Ambassador who referred them at [email protected])

Thank you for your continued support. Good luck and let the race begin!

TAKE ACTION

Tell Congress to Protect Patient Assistance for Individuals with Chronic & Life-Threatening Conditions Health plans across the country are denying coverage to patients with expensive – yet devastating – conditions from their plans, undermining the intent of the Affordable Care Act (ACA) and unraveling the safety net patient assistance groups have worked so hard to create.

PARTNER COALITIONS

The Patient Services Government Relations Department organizes and participates in advocacy coalitions with our sister organizations and industry partners that champion important public policy issues that positively affect our patients. These vital connections between like-minded groups bring invaluable strength to our message and advocacy efforts on behalf of our patients.

Partners include Marketplace Access Project Coalition, American Plasma Users Coalition, Partnership to Improve Patient Care, Alliance for a Stronger FDA, Virginia BIO, and BioFlorida.

Advocacy In The News

Stay up to date with everything the Government Relations department is doing to make a difference for our patients.

MEET THE TEAM

James Romano

James Romano

Director of Government Relations and Advocacy

James Romano is currently the Director of Government Relations and Advocacy at Patient Services Incorporated (PSI). He has served in this capacity since 2005. James began his career in patient advocacy at the age of 19. As a freshman in college, he lobbied for the passage of the Ricky Ray Hemophilia Relief Fund Act (Public Law 105-369) on behalf of the Hemophilia Community. James has five members of his family with hemophilia and is the fourth generation to advocate on behalf of the rare disease and plasma community.

For his career, James has worked to remove barriers to access to healthcare for patients with rare disease and chronic illnesses. James was a staff members to a Member of Congress as well as a lobbyist. Since starting at PSI, James has worked to advance the cause of access for patients with expensive rare conditions to the therapies and treatments. The department has expanded to build relationships with our donors and other patient advocacy groups. PSI is always looking to partner to expand access to other rare disease groups.

James earned a BA from Marymount University, an MPA from George Mason University, and his MBA at the University of Mary Washington.

Mark Hobraczk

Mark Hobraczk

Government Relations Associate

Mark Hobraczk has spent over two decades expanding access to care for those with high-cost medical conditions. He started out as the Institutional Reimbursement Manager for Wyoming Medicaid, supervised the reimbursement program for the world’s largest manufacturer of cochlear implant devices that help the deaf restore hearing, and directed the health care financing and advocacy efforts for the American Speech Language Hearing Association and Health Industry Distributors Association.

Mark returned to law school mid-career, where he represented low-income clients in the University of Denver’s Disability Law clinic. He filled a similar role for the ACCESS Program before it was gifted to PSI and has since served as their Government Relations Associate.

Mark also earned a Master of Public Administration from the George Washington University and a Bachelor in Economics from Rutgers University.

Kyle Rosner

Kyle Rosner

Government Relations Associate

Kyle is currently the Government Relations Associate with Patient Services Incorporated. He graduated from Radford University with a B.A. in History and Political Science. After interning in Senator Tim Kaine’s office in college, he began his career as a Governor’s Fellow for the Secretary of Agriculture and Forestry in the Office of Virginia Governor Terry McAuliffe. After the Fellowship, Kyle worked full-time as a staff assistant for the Secretary of Administration in the Governor’s Office where he served for a year before transitioning to PSI in August of 2016. Outside of politics, Kyle enjoys reading, hiking, and traveling.

THREATS AGAINST CHARITIES

Health care charities are under threat.  Help PSI protect rare disease patients!