Advocate for Patients
Rare Disease Advocacy
We advocate for greater access to affordable health care and treatment for patients with rare and chronic diseases. Working on both the state and federal level, the department combines expertise in legislative and regulatory affairs with a passion for advocacy ensuring our patients’ voices are heard and patient assistance is protected.
Policy
Positions
State
Programs
Get
Involved
Contact Congress
Below is a form that allows you to contact your members of Congress and share your story about chronic disease and charitable assistance.
Take Action
Tell Congress to Protect Patient Assistance for Individuals with Chronic & Life-Threatening Conditions. Health plans across the country are denying coverage to patients with expensive – yet devastating – conditions from their plans, undermining the intent of the Affordable Care Act (ACA) and unraveling the safety net patient assistance groups have worked so hard to create.
PARTNER COALITIONS
The Patient Services Government Relations Department organizes and participates in advocacy coalitions with our sister organizations and industry partners that champion important public policy issues that positively affect our patients. These vital connections between like-minded groups bring invaluable strength to our message and advocacy efforts on behalf of our patients.
Partners include United For Charitable Assistance, American Plasma Users Coalition, Partnership to Improve Patient Care, Alliance for a Stronger FDA, Virginia BIO, and BioFlorida.
