Advocate for Patients
Rare Disease Advocacy
We advocate for greater access to affordable health care and treatment for patients with rare and chronic diseases. Working on both the state and federal level, the Government Affairs Department combines expertise in legislative and regulatory affairs with a passion for advocacy, ensuring our patients’ voices are heard and patient assistance is protected.
Policy
Positions
State
Programs
Get
Involved
PARTNER COALITIONS
The Government Affairs Department organizes and participates in advocacy coalitions with our sister organizations and industry partners that champion important public policy issues that positively affect our patients. These vital connections between like-minded groups bring invaluable strength to our message and advocacy efforts on behalf of our patients.
Examples of partner groups include United For Charitable Assistance, American Plasma Users Coalition, Partnership to Improve Patient Care, Cancer Moonshot Initiative, All Copays Count Coalition, MAPRx Coalition, Rare Disease Diversity Coalition, Pennsylvania All Co-Pays Count Coalition and Fair Health Care Virginia.
