Hemophilia: When Life Turned Towards Hope

Hemophilia: When Life Turned Towards Hope

Hemophilia: When Life Turned Towards Hope “I have lived with the bleeding disorder, Hemophilia B since my birth in 1952. I have seen and lived through a lot of changes since the days when my parents were warned that I might not live past the age of 20.” – Steve,...
How One Fabry Patient Is Fighting Back

How One Fabry Patient Is Fighting Back

Enough is enough. For Linda and her family, the journey to find answers was a lifetime in the making. A lifetime filled with pain, sorrow, loneliness, and heartbreak. It would not be until the age of 48 when an answer would finally come. For Linda, and her now Fabry...
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