How One Alpha-1 Patient Found Hope

How One Alpha-1 Patient Found Hope

Nearly one of every 2,500 people have this rare genetic condition, and for many like Maurice, they’re fighting back by sharing their story to help raise awareness and to bring encouragement to others battling this same condition. Recently, Maurice shared with us an...
Our GIST Story: An Eleventh-Hour Miracle

Our GIST Story: An Eleventh-Hour Miracle

“She was a vibrant, energetic woman. Then all of a sudden, she wasn’t. Our devoted mother of 3 was lying fragile, almost lifeless in a hospital bed. At first, we thought it was just a bad flu, but the doctor said it was cancer, stage 4. The news knocked the air out of...
Forgotten No More: My Fabry Diagnosis

Forgotten No More: My Fabry Diagnosis

“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago. In my mind, I could not accept that how something so important could be forgotten.” Imagine living your life battling an unknown illness, yet all...
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