My Long Journey To Diagnosis: An HAE Story

My Long Journey To Diagnosis: An HAE Story

“Finally, the medical world announced treatment by infusion. I was getting 2 vials every 3 days which freed me of the attacks completely.” His name is Charles and he is one of between 10,000 and 50,000 people with Hereditary Angioedema. Charles has had HAE nearly his...
Living With PI: Portrait of a Killer (Guest Post)

Living With PI: Portrait of a Killer (Guest Post)

It was a sunny California-style autumn day in November 2005, when I woke to find that I could not get out of bed. For months, I had been dragging myself around feeling sick all over, but not sick enough to stay in bed all the time; I was hovering just above the point...
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