Share your Story
We’d love to hear your story. Each year, we receive thousands of testimonials from patients with chronic and rare diseases. By sharing your story, you help give hope to others.
Advocacy is crucial for restoring hope and health to patients. There are several ways to get involved with our advocacy initiatives, such as becoming an Advocacy Ambassador on Facebook, contacting your representatives for timely legislative pushes, and subscribing to our Action Alerts.
YOUR DONATION SAVES LIVES
Through donations, we are able to help patients access and afford necessary medications, and restoring hope to their lives.