Chronic Illness Blog & Rare Disease News Articles

Meet the Team: Ashlea Christiansen, Director of Government Affairs

Meet the Team: Ashlea Christiansen, Director of Government Affairs

Written by Ashlea Christiansen When I tell folks I’m both a lawyer and a lobbyist, I often receive this funny mixture of grimaces with raised eyebrows. It’s ok - I know, both professions have terrible reputations, but I’ve been so incredibly lucky to have advocated on behalf of some of the most...

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Gaucher Disease: Diagnosis, Treatment, & Patient Stories

Gaucher Disease: Diagnosis, Treatment, & Patient Stories

Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there may be a lengthy diagnosis process.  Luckily, with modern medicine and treatment, Gaucher disease is treatable. If you are living with or recently...

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Chronic Illness and Depression

Chronic Illness and Depression

*PSI does not give medical advice. The information below should not be substituted for that of a mental health or medical professional. Please speak to your medical provider if you are experiencing symptoms of depression or any other condition.* After a chronic...

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CML – Leukemia Patient Stories

CML – Leukemia Patient Stories

Being diagnosed with Chronic Myelogenous Leukemia (CML) can seem like an endless road with infinite steps. Luckily, for anyone battling leukemia, there is hope.  CML, a type of leukemia that starts in blood-forming cells within bone marrow, is a rare cancer that...

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