News & Blog Articles
Learning More About Primary Immune Deficiency Diseases
Imagine being sick several times in a year without much of a break in between. Now, imagine this happening year after year. That’s exactly what happened to Tommie Cassen in this video produced by the Immune Deficiency Foundation. Tommie suffers from one of the many types of PIDD called Common...
Living with Sickle Cell Disease and Anemia
Living with sickle cell disease, or sickle cell anemia, a specific form of sickle cell disease, is a reality for thousands of people across the world. September is National Sickle Cell Awareness Month, which is recognized by Congress to help focus attention on the...
Chronic Pain Management Techniques
Chronic pain isn’t something to be taken lightly. So many of our own patients deal with chronic pain every single day, which is why chronic pain management techniques and exploring different ways to manage chronic pain are so crucial. Chronic pain is a common symptom...
Nonprofit Podcast Rare Perspectives Season Recap
CHRONIC ILLNESS NONPROFIT PODCAST SERIES WILL CONTINUE IN SEPTEMBER Have you listened to our podcast yet? Patient Services Incorporated (PSI) invites you to listen to the latest season of our nonprofit podcast Rare Perspectives, a series available...
Forgotten No More: My Fabry Diagnosis
“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago....
Could There Be Hope On The Horizon For Sickle Cell Patients?
In the United States, an estimated 100,000 people live with sickle cell disease. For most, living with SCD, an...
Beyond Awareness: What 4 Tweets Taught Us About Cystic Fibrosis
Each year, the month of May is designated for Cystic Fibrosis Awareness. Throughout the month, a wealth of information...
Helping Others Someday Win: My Story With Hepatitis C
In 1989, hepatitis C was finally discovered. But, it wouldn’t be until 1992 before donated blood would even begin to...
Marketplace Access Project Gains Momentum: Reaches 150 Bipartisan Cosponsors for Legislation to Protect Charity Assistance for Nation’s Most Vulnerable Patients
WASHINGTON, D.C. (May 21, 2018) – The Marketplace Access Project (MAP), a group of leading national patient advocacy...
My Long Journey To Diagnosis: An HAE Story
“Finally, the medical world announced treatment by infusion. I was getting 2 vials every 3 days which freed me of the...
When 50 Patient Advocates Meet Congress: What Happened Next?
50 patient advocates from 22 states descended upon the nation’s capital recently conducting over 120 meetings in an...
New Avalere Health Analysis Finds PSI Charitable Assistance Reduces Medicare Spending and Increases Patient Access to Care
New Avalere Health Analysis Finds PSI Charitable Assistance Reduces Medicare Spending and Increases Patient Access to...
Living With PI: Portrait of a Killer (Guest Post)
It was a sunny California-style autumn day in November 2005, when I woke to find that I could not get out of bed. For...
