Chronic Illness Blog & Rare Disease News Articles
What is Lambert-Eaton Myasthenic Syndrome (LEMS)?
Lambert-Eaton Myasthenic Syndrome (LEMS) is an autoimmune disease that affects around 1,500 people worldwide. Patient Services, Inc. offers assistance for LEMS. What is Lambert-Eaton Myasthenic Syndrome? LEMS is an autoimmune disease where the body attacks an area called the “neuromuscular...
Gaucher Disease: Diagnosis, Treatment, & Patient Stories
Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there may be a lengthy diagnosis process. Luckily, with modern medicine and treatment, Gaucher disease is treatable. If you are living with or recently...
Chronic Illness and Depression
*PSI does not give medical advice. The information below should not be substituted for that of a mental health or medical professional. Please speak to your medical provider if you are experiencing symptoms of depression or any other condition.* After a chronic...
CML – Leukemia Patient Stories
Being diagnosed with Chronic Myelogenous Leukemia (CML) can seem like an endless road with infinite steps. Luckily, for anyone battling leukemia, there is hope. CML, a type of leukemia that starts in blood-forming cells within bone marrow, is a rare cancer that...
Living with Sickle Cell Disease and Anemia
Living with sickle cell disease, or sickle cell anemia, a specific form of sickle cell disease, is a reality for...
Chronic Pain Management Techniques
Chronic pain isn’t something to be taken lightly. So many of our own patients deal with chronic pain every single day,...
Nonprofit Podcast Rare Perspectives Season Recap
CHRONIC ILLNESS NONPROFIT PODCAST SERIES WILL CONTINUE IN SEPTEMBER Have you listened to our podcast yet? Patient...
Kentucky can be a leader in suspending the third-party payer rule
ALLOW LIFESAVING NONPROFIT ASSISTANCE THROUGHOUT COVID-19 Help me understand this…according to a recent Families...
Rare Perspectives Podcast Special: Protect Life-Saving Charitable Assistance
URGENT CALL TO ACTION WITH GOVERNMENT RELATIONS ASSOCIATE NATHAN THOMSON This week on Rare Perspectives, we caught up...
Support Live-Saving Nonprofit Assistance in the Next COVID-19 Relief Package
YOUR SUPPORT TRULY MAKES A DIFFERENCE PSI serves as a vital safety net for many patients who need assistance affording...
Chronic Disease Day 2020
A (VIRTUAL) DAY OF RECOGNITION FOR THE CHRONIC AND RARE DISEASE COMMUNITY Countless events have been canceled over the...
Moving Mountains for Hereditary Angioedema (HAE) Patients
A CONVERSATION WITH TONY CASTALDO, FOUNDER OF HAE INTERNATIONAL Recently on our Rare Perspectives podcast, we had...
Our Ongoing Commitment to PSI Staff, Patients, Supporters and Advocates
This year has been more than challenging with the national COVID-19 pandemic and devastation caused by continued...
