Chronic Illness Blog & Rare Disease News Articles
Lysosomal Acid Lipase Deficiency – Rare but Treatable
Lysosomal Acid Lipase Deficiency (LAL) is a rare, genetic condition that causes individuals to have buildup of fatty material in their cells. Most people will have symptoms by the age of 5. What is Lysosomal Acid Lipase Deficiency (LAL)? The two forms of lysosomal acid deficiency were once thought...
Gaucher Disease: Diagnosis, Treatment, & Patient Stories
Receiving a Gaucher disease diagnosis can be overwhelming. Gaucher can have many different symptoms, meaning there may be a lengthy diagnosis process. Luckily, with modern medicine and treatment, Gaucher disease is treatable. If you are living with or recently...
Chronic Illness and Depression
*PSI does not give medical advice. The information below should not be substituted for that of a mental health or medical professional. Please speak to your medical provider if you are experiencing symptoms of depression or any other condition.* After a chronic...
CML – Leukemia Patient Stories
Being diagnosed with Chronic Myelogenous Leukemia (CML) can seem like an endless road with infinite steps. Luckily, for anyone battling leukemia, there is hope. CML, a type of leukemia that starts in blood-forming cells within bone marrow, is a rare cancer that...
Chronic Disease Day 2020
A (VIRTUAL) DAY OF RECOGNITION FOR THE CHRONIC AND RARE DISEASE COMMUNITY Countless events have been canceled over the...
Moving Mountains for Hereditary Angioedema (HAE) Patients
A CONVERSATION WITH TONY CASTALDO, FOUNDER OF HAE INTERNATIONAL Recently on our Rare Perspectives podcast, we had...
Our Ongoing Commitment to PSI Staff, Patients, Supporters and Advocates
This year has been more than challenging with the national COVID-19 pandemic and devastation caused by continued...
For One aHUS Patient, The Show Must Go On
On tour starring as Gaston in Beauty and the Beast, Matthew Farcher was just 22 when the production came to Houston,...
Patient Services, Inc. Appoints Gwen Cooper as CEO
Current CEO Art Wood to retire July 3, 2020 Midlothian, VA –The board of directors of Patient Services, Inc. is...
Pushing Through Life’s Limits with Hemophilia
“Looking back through all the adversity and everything. I wouldn’t change a single moment of it because it is really...
7 Tips to Live a Healthy Life with a Chronic Disease
Living with a chronic disease can be a challenging thing to navigate and it may take time to really get to the point...
Leading Patients to Positive Outcomes
Since its inception in 1989, Patient Services, Incorporated has been the pioneer leading the charge to find solutions...
Lessons Learned During the COVID-19 Outbreak
As the world continues to shelter in place, if there is one city that has been hardest hit by Covid-19, it has been...
