Your Story Matters

Your words have the power to restore hope and health to patients and caregivers in need! Each year, we receive thousands of emotional testimonials from patients and their families describing how Accessia Health’s assistance has impacted their lives. We’d love to hear your story.    

You can share your personal experience with Accessia Health or ACCESS by completing this secure form. Prior to submitting your story, click here to view the Patient Consent Form. Help others by sharing your story.

Unsure about where to begin? Use one of our conversation starters below to help put your thoughts into words:

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How has Accessia Health and/or ACCESS helped you?
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What advice would you give to someone recently diagnosed with the same chronic illness?

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What gives you strength?

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What words of encouragement would you provide to someone who is struggling with treatment?

Share Your Story

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    My PSI: Amee’s Story Story

    “I am 67 and I was diagnosed with Gaucher disease at age 16. At that time, there was no medicine for it. After a lot of struggle, I finally was able to get the care and life-saving drugs I needed.

    Thanks to several organizations, including PSI, I am able to continue receiving my life-saving medication and special care from a wonderful doctor. Thank you, PSI, from the bottom of my heart! My family and I are forever grateful!”

    Rachel H.

    Gaucher Disease Patient

    “Without the help from PSI, I am not sure how I would pay for my medical insurance and all of the copays due to so many doctor visits.

    Fabry disease is a horrible disease but not having to worry about the huge costs of treatments and medicine is great for getting rid of the stress of having an incurable disease. Thank you so much, PSI, for all you do!”

    Brian P.

    Fabry Patient

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