News Alert – December 17, 2018

News Alert – December 17, 2018

TEXAS JUDGE DECLARES ACA INVALID Ruling is stayed pending appeal A lower court ruled late Friday that the entire Affordable Care Act (ACA) must be overturned because Congress zeroed out the tax penalty for the law’s mandate that everyone purchase health insurance they...
News Alert- November 13, 2018

News Alert- November 13, 2018

The mid-term elections this week delivered Democrats not only control of the U.S House of Representatives, but a net gain of at least seven governorships, eight state legislative chambers, and over 350 state legislative seats. The substantial Democratic gains carry...
PSI’s Evening of Hope: A Look Back

PSI’s Evening of Hope: A Look Back

Each year, at their annual Evening of Hope event, Patient Services Inc., present various awards to honor patient champions within the chronically-ill community. In leading up to this year’s Evening of Hope on September 19th in Washington DC’s Newseum, we will be...
Our GIST Story: An Eleventh-Hour Miracle

Our GIST Story: An Eleventh-Hour Miracle

“She was a vibrant, energetic woman. Then all of a sudden, she wasn’t. Our devoted mother of 3 was lying fragile, almost lifeless in a hospital bed. At first, we thought it was just a bad flu, but the doctor said it was cancer, stage 4. The news knocked the air out of...
Forgotten No More: My Fabry Diagnosis

Forgotten No More: My Fabry Diagnosis

“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago. In my mind, I could not accept that how something so important could be forgotten.” Imagine living your life battling an unknown illness, yet all...
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