News Alert – December 17, 2018

News Alert – December 17, 2018

TEXAS JUDGE DECLARES ACA INVALID Ruling is stayed pending appeal A lower court ruled late Friday that the entire Affordable Care Act (ACA) must be overturned because Congress zeroed out the tax penalty for the law’s mandate that everyone purchase health insurance they...
News Alert- November 13, 2018

News Alert- November 13, 2018

The mid-term elections this week delivered Democrats not only control of the U.S House of Representatives, but a net gain of at least seven governorships, eight state legislative chambers, and over 350 state legislative seats. The substantial Democratic gains carry...
PSI’s Evening of Hope: A Look Back

PSI’s Evening of Hope: A Look Back

Each year, at their annual Evening of Hope event, Patient Services Inc., present various awards to honor patient champions within the chronically-ill community. In leading up to this year’s Evening of Hope on September 19th in Washington DC’s Newseum, we will be...
Our GIST Story: An Eleventh-Hour Miracle

Our GIST Story: An Eleventh-Hour Miracle

“She was a vibrant, energetic woman. Then all of a sudden, she wasn’t. Our devoted mother of 3 was lying fragile, almost lifeless in a hospital bed. At first, we thought it was just a bad flu, but the doctor said it was cancer, stage 4. The news knocked the air out of...
Forgotten No More: My Fabry Diagnosis

Forgotten No More: My Fabry Diagnosis

“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago. In my mind, I could not accept that how something so important could be forgotten.” Imagine living your life battling an unknown illness, yet all...
Hope for Uncle Bill and CML

Hope for Uncle Bill and CML

For many, the difference between life and death can be found in one’s ability to cover the enormous costs of treatment. There are stories, too many to count, of countless patients battling rare disease that have had this cross to bear. Quite frankly, one story is one...
A Solution for the Chronically Ill

A Solution for the Chronically Ill

Could you afford to dedicate 21% of your income to life-saving medications? A recent RAND study revealed that over 60% of Americans live with a chronic illness and this is their reality.  In 2018, the average household income of a patient receiving support from...
Honoring Bleeding Disorders Awareness Month

Honoring Bleeding Disorders Awareness Month

It’s bleeding disorders awareness month. At Patient Services Inc., it’s a month where we not only honor some amazing and courageous heroes within the bleeding disorders community, but also honor our own beginnings. Our founder, Dana Kuhn, Ph.D., knew the pain...
Rare Disease Day

Rare Disease Day

It’s rare disease day and with so many amazing stories of raw strength and courage, we at Patient Services Inc., are incredibly grateful to play a part within this special community. For every call, email, or even online submission for assistance from someone within...
To Advocate, It Takes A Village: Meet Morri

To Advocate, It Takes A Village: Meet Morri

With a $90,000 price tag per month for treatment, for Morri, she would need a village to come alongside, and walk this trail with her. Like so many others within the rare disease community, without the help of health care charities, treatment would not be possible....
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