Looking Back: The 2017 Extraordinary Support Award Recipient

Looking Back: The 2017 Extraordinary Support Award Recipient

“Nobody really knows of this disease, it has similar symptoms to asthma, or being out of shape. The more we can educate physicians about it, the better.” Says Brad Wong, president and CEO of The Pulmonary Hypertension Association in an interview with app.com. In 2017,...
Fighting Sickle Cell Disease: Honoring Dr. Wally Smith

Fighting Sickle Cell Disease: Honoring Dr. Wally Smith

“Nobody wanted these patients in 1984 in Memphis.” – Dr. Wally Smith In 1984, when Dr. Wally Smith began working with patients with Sickle Cell Disease, nobody wanted them. Often times, it was a matter of getting these patients off the roles as quickly as possible...
A New Normal: Living With Hypoparathyroidism

A New Normal: Living With Hypoparathyroidism

“I was living in fear, not fully understanding what was happening or what the future held, this was unacceptable, no clear explanation it was stressful, scary.” – PSI Patient, Elaine Not knowing what the future held, and living with fear, after much time, Elaine had...
At The Crossroads Of Retirement And Rare Disease

At The Crossroads Of Retirement And Rare Disease

“This medicine helps Jan so much with her speech and swallowing; I don’t know what she would do without it!” states Chuck, whose wife, Janet, was diagnosed with Amyotrophic Lateral Sclerosis in 2011 at the age of 60. Approaching retirement, this wasn’t in the...
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