Our GIST Story: An Eleventh-Hour Miracle

Our GIST Story: An Eleventh-Hour Miracle

“She was a vibrant, energetic woman. Then all of a sudden, she wasn’t. Our devoted mother of 3 was lying fragile, almost lifeless in a hospital bed. At first, we thought it was just a bad flu, but the doctor said it was cancer, stage 4. The news knocked the air out of...
Forgotten No More: My Fabry Diagnosis

Forgotten No More: My Fabry Diagnosis

“However, the most disturbing thing was that Fabry was discovered by a German physicist more than a hundred years ago. In my mind, I could not accept that how something so important could be forgotten.” Imagine living your life battling an unknown illness, yet all...
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