Hemophilia: When Life Turned Towards Hope

Hemophilia: When Life Turned Towards Hope

Hemophilia: When Life Turned Towards Hope “I have lived with the bleeding disorder, Hemophilia B since my birth in 1952. I have seen and lived through a lot of changes since the days when my parents were warned that I might not live past the age of 20.” – Steve,...
News Alert- November 13, 2018

News Alert- November 13, 2018

The mid-term elections this week delivered Democrats not only control of the U.S House of Representatives, but a net gain of at least seven governorships, eight state legislative chambers, and over 350 state legislative seats. The substantial Democratic gains carry...
How One Fabry Patient Is Fighting Back

How One Fabry Patient Is Fighting Back

Enough is enough. For Linda and her family, the journey to find answers was a lifetime in the making. A lifetime filled with pain, sorrow, loneliness, and heartbreak. It would not be until the age of 48 when an answer would finally come. For Linda, and her now Fabry...
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