by PSI Patient | Dec 20, 2018 | Patient Blog
At the age of 49, Lisa’s lifelong mystery had finally been solved. It was just 10 months earlier that her twin sister was diagnosed with the very same rare disease. And although the discovery has brought closure to so many unanswered questions, it has also led to a...
by PSI Team | Dec 17, 2018 | Advocacy, News, Patient Coalition
TEXAS JUDGE DECLARES ACA INVALID Ruling is stayed pending appeal A lower court ruled late Friday that the entire Affordable Care Act (ACA) must be overturned because Congress zeroed out the tax penalty for the law’s mandate that everyone purchase health insurance they...
by PSI Patient | Dec 13, 2018 | Patient Blog
“I absolutely would not be able to afford my medications if it wasn’t for the organizations, and without them, I would not be here much longer for my family.” – Rick Nearly 30 years ago, PSI, the nation’s first patient assistance charity, was established to help...
by PSI Patient | Dec 11, 2018 | Patient Blog
When Cost Of Treatment Forces Heartbreaking Choices Imagine yourself sitting in a doctor’s office and you are being told you have an ultra-rare bone marrow failure that is life threatening. The only cure for this illness, the doctor explains, is a bone marrow...
by PSI Team | Dec 11, 2018 | Advocacy, News, Patient Coalition
In the Health Reform Update for this week, federally-facilitated Marketplace enrollment continues to lag by more than ten percent after dramatic cuts to marketing and outreach. However, states that created their own Marketplaces under the Affordable Care Act (ACA) are...