Article reposted with permission from Sultan City Administrator, Will Ibershof
Imagine what it would be like to be diagnosed with a rare, potentially life-threatening disease that causes the cells inside your body to become your enemy. And imagine if the treatment for that disease was even more excruciating than the condition itself, but you needed it to survive.
Matt Blue knows exactly what that’s like, because it’s his life with Fabry Disease.
Fabry Disease, also called Fabry’s Disease, is a genetic disorder that causes a particular type of fat to build up in the cells. Most people naturally produce an enzyme that breaks down the fatty substance, but people with Fabry Disease lack that enzyme. Symptoms include nerve pain, particularly in the hands and feet, rash, eye problems and gastrointestinal issues. It can cause progressive kidney damage leading to renal failure, heart issues and stroke. The disease is treated with bi-weekly intravenous (IV) infusions of a drug called Fabrazyme, which puts the enzyme into their bodies. For Matt, the treatment was almost worse than the disease itself, causing severe pain and other unbearable side effects. A cocktail of narcotic pain medications and benzodiazepines did little to temper the discomfort of the infusion. Pain became a way of life for Matt, the pain of the disease coupled with the pain of the treatment.
Until Dr. Chris Holder ND suggested he try floating.
“After one ninety-minute session I walked away with no pain,” Matt said.