Chronic Illness Resources and Rare Disease Organizations
Diagnosis Specific Resources
Ahus
AIDS
Alpha -1
ALS (amyotrophic Lateral Sclerosis – Lou Gehrig’s Disease)
Alzheimer’s Disease
Antiphosholipid Syndrome
Arthritis
Autism
Cancer
All Cancer
- American Cancer Society
- American Childhood Cancer Organization
- Cancer Care
- Chemo Experts
- Dana-Farber Cancer Institute
- Facing Our Risk of Cancer Empowered, Inc
- OncoLink Cancer News
- The Leukemia and Lymphoma Society
- The Recovery Village
Bone Tumor
Breast Cancer
- After Breast Cancer Diagnosis
- Living Beyond Breast Cancer
- Right Action for Women: Christina Applegate Foundation
- TheBreastCareSite.com
- The Pink Fund
- Susan G Komen
Colorectal Cancer
Ependymoma (Brain or Spinal Tumor)
Gastrointestinal Stromal Tumors
Lung Cancer
Mesothelioma
- Malignant Mesothelioma Guide
- Mesothelioma.com
- Mesothelioma & Asbestos Awareness Center
- Mesothelioma Help
- Mesothelioma Help Now
- Mesothelioma Group
- Mesothelioma Specialists
- Mesothelioma.net
- Mesothelioma Vets
- The Mesothelioma Center
Melanoma
C-Diff
Cerebral Palsy
CIDP
Congestive Heart Failure
COPD
Crohn’s Disease
Cystic Fibrosis
Dermamyositis
Diabetes
Glaucoma
Growth Hormone Deficiency
Guillain-Barre Syndrome (GBS)
Hemophilia
Hepatitis
Hereditary Angioedema
Immune Deficiency
Mental Health
Pregnancy
Pulmonary Hypertension
Undiagnosed
Educational Resources
Financial Resources
PSI does not advocate the use of any pharmaceutical drug. Resources are offered as a matter of information to access alternative resources such as educational and/or financial options or avenues of finding genetic counseling and diagnostic testing in order to preserve and manage ones health. These organizations are not affiliated with PSI and should be contacted directly with questions.
